Tag Archive for: ALzheimer’s

Alzheimer’s Disease—The Ultimate Enemy of the Lifelong Love Story

If you and your spouse have lived within a marriage that has been filled with an unconditional, unselfish, love for each other, then you have been truly blessed. Giving of oneself to another “no matter what” creates a connection that can never be broken, and it leaves behind a journey that has been sheathed with laughter, joy, comfort, and compassion powered by that love.

This was God’s plan, and many have embraced it and lived it and reaped the rewards of truly being ONE. Loving someone more than yourself can be a hard thing to do and many have tried but failed. But far more have tried and succeeded by emptying themselves for each other.

I have two dear friends –better yet, I shall call them the BEST friends anyone could ever have. Their names are Mike and Roberta, and we met 35 years ago when our sons were playing youth baseball. Their friendship was unconditional, unquestioned, and given freely without reservation. They were unhesitatingly there for my family and later, after my wife, Loretta had passed, for me.

As is the way of things time never waits for anyone and keeps moving forward. Now Roberta  looks at the dying person in the bed before her and realizes that part of herself is lying there too. Suddenly their lives together scroll before her. The courtship, the wedding, the birth of their child, the laughter, the good times and the bad, the crying, and so forth. This is when having God in your life is crucial. Hope springs eternal and therein lies the truth of the power of faith.

My friend, Mike, was raised in an orphanage in Philadelphia. Long ago, his mother dropped him off in front of the place on a snowy Christmas Eve. She left him standing there with a note pinned to his jacket. He was four years old. When he turned eighteen, he was dismissed from the orphanage, given a few bucks, and offered “best wishes and God’s blessings.”

He walked away from that place and immediately joined the United States Marine Corps. From that day forward, Mike, who was a trucker, has walked, talked, and looked like a Marine. Most of all he has loved his family and his country as completely as he could.

Roberta, who was a florist, was one of three sisters and was also from Philadelphia. Her life looks like different chapters in a novel whose genre could be considered “urban legend melodrama.” She was one of three sisters and was abused as a child. She lost her first husband to diabetes when she was thirty-one years old. Her father, an alcoholic, was burned over 75% of his body, and Roberta cared for him until he recovered and could somewhat function on his own.

Then she turned to alcohol, which ultimately led her to Alcoholics Anonymous. Mike was also attending AA, and that is where they met. He became her sponsor, and he was relentless in his quest to get her to stop drinking. She eventually did, and they got married. (Neither of them has had a drink in over 50 years).

A half-century of climbing and struggling down into the valleys and over the mountains of the journey called “life” has passed. They never wavered, stood tall, and together stared down and conquered all obstacles in their path. They raised a son who grew up to be the chief pilot for a well-known airline. Mike and Roberta are a living definition of the word marriage.

One more challenge stands before them. The only problem is, this time only one of them can confront the challenge. And, upon completing that challenge, that person will be alone.

Mike has been attacked by the cruel demon known as Alzheimer’s disease. It began erasing his memory some years ago, and it has relentlessly worked its evil 24/7. Today Mike is in a memory care unit inside a nursing home. He remembers nothing, yet his face lights up and he smiles ear to ear when his dear Roberta walks into the room. He thinks she is his “mommy.” Except she is not. He also has lost the ability to swallow and can no longer eat or drink.

His lover and best friend is now faced with the task of watching him leave her forever. She has asked hospice to keep him pain free and as comfortable as possible. The journey of the long goodbye has reached the last turn before arriving at the station. All that Roberta can do is embrace what was and know that his spirit will always be with her. Then she can take comfort in knowing that one day, holding hands, they will stand together again.

May God bless and have mercy on all Alzheimer’s victims and their families.

Copyright © LarryPeterson 2018

Onward & Forward into 2016—‘Laughing Still Allowed’

by Larry Peterson

I had written sporadically over the years but I really started my ”prolific,” overzealous writing career in earnest about seven or eight years ago. I had taken C.S. Lewis’ advice and grabbed onto his quote, “You are never too OLD to set a new GOAL or to dream a new DREAM.” So I pulled out the old work I had squirreled away and before I could sharpen a pencil my expanding internal dictionary of adjectives was stopped in its tracks. I had to be operated on for prostate cancer.

The recovery process was a bit tough (part of that included having 30 staples plucked out of my forbidden zone, which was not pleasant, nor was catheter removal) but, no problem—the cancer was gone and still is seven years later. God obviously was not ready for me. So, I headed back to the keyboard and mouse. I thanked Him then and I have thanked Him every day since.

Then Martha was diagnosed with Lymphoma. Onward into the world of chemotherapy cycles which included her losing her hair, not once but twice. The second time she asked me to just shave her head and get it over with. I did and we laughed as she turned into cue ball redux. Then her memory began to produce  strange and forgetful behavior. I thought it was “chemo-brain” but it wasn’t. During that time I managed to have a children’s book published, followed by my novel.  (That publisher went out of business—another story for another time).

Ratcheting up my caregiver duties, I still completed another novel called “Destination Homeless.” That was about two years ago and all I have “left to do” is a final edit. I also have my latest novel almost done; it has a publisher and is already out on Amazon in volume form. Plus, over the years, I have written over 600 blogs. I had written more than I thought, which surprised me because it seemed like I was never getting anything done.

Anyway, a year ago I wrote an article for the CWG blog titled, “Celebrating Our First Christmas with Alzheimer’s Disease: Laughter Allowed.” Martha’s cognitive problems had started about a year and a half prior to that time so, as we march onward into 2016, we are about two and a half years down the Alzheimer road. Things are not the same as they were even a year ago. (Alzheimer’s Disease is one illness that cannot be cured, stopped, or even slowed).

Last year’s blog had in its title the words, “Laughter Allowed.” Well, for the past three (maybe four or five) months my writing has seemingly run into a major obstacle. There was a large brick wall in front of me and I was unable to type past it. The blogs became fewer and the novel was stuck in neutral. I was actually getting a bit freaked out about it and beginning to worry that I was turning into sludge. I was probably being a bit hard on myself because when you take care of an Alzheimer’s patient and do the shopping, the cooking, the daily distribution of various meds 4X a day, deal with all the doctors  (scheduling, visits, weekly blood draws, port flushes etc.), do the bill paying, home maintenance, etc., and then try to find “quiet” time to fit writing into the equation, that is when you can suddenly go blank. I did. Then came Thanksgiving.

The family all got together at Larry Jr’s. My three kids were there and my seven grandkids and we all had a grand time eating all the traditional Thanksgiving foods, watching football and hanging out together. On the way home Marty said to me, “What are we having for dinner?”

Actually, for a moment, I thought she was making a joke. But she wasn’t you see. She did not remember. I said, “Are you kidding me? We just had turkey and all the fixings for Thanksgiving. Don’t you remember? We just left Larry’s house five minutes ago.” Then the reality of the moment hit… Damn, I do hate Alzheimer’s Disease. Anyway, she looked at me and I at her and we both began to laugh. As ridiculous as it sounds it was a great moment for both of us.  Then I remembered—“Laughter allowed.”

Christmas is now over and I am writing this and I am extra thankful for Thanksgiving 2015. That day helped me snap back to the words in the title of last year’s blog. Laughing freed me up and I have actually spent some time on the final chapter of the Demons of Abadon. As for my dear wife, Martha, she is somewhat content in her own convoluted world. She does not remember Christmas Day. However, strange as it may seem, everything is okay. That is because on Thanksgiving Night, 2015, our unexpected and improbable friend, Laughter, returned. (I like to think it was a Christmas angel sent from above to help us out).

Once again I have relearned something I already knew and let slip by—no matter what is happening, when you have faith—laughing is allowed. It is God’s pressure relief valve and He installed one of these valves in each of us. More people need to let it go off once in a while. That’s it for 2015. Happy New Year, happy writing and God’s blessings to you all.

©Larry Peterson 2016